Tuesday, 24 January 2012

So.. uh.. hi!
*taps screen* This thing on?

Starting a thing is always the worst, don't you find? That sense of enthusiastic excitement at the initial idea, dashed by the cold hard reality of 'putting a group of words together that doesn't make you instantly sound like an idiot'. Made all the harder by the cognitive dissonance of Fibromyalgia and (at the moment) pretty constant chronic pain.

Sooo.. I guess pretty much advance apologies for spelling/ spouting nonsense, and please, please shout up in comments if I get too much into gobbledygook!

I guess it doesn't really help that I'm currently in the midst of the biggest FMS flare up I think I've ever had so far. It's like all the brain I ever had back in the days I used to be a tutor, the days I did my degree, the years I ran club nights, froze up then steadily melted out of my ears. Frustrating as hell? Just a little bit. Like there's an intelligent person in here somewhere, I'm sure there used to be, now if only I could find her and get my shit together, that'd be just dandy.

So yeah, I guess I'm going to swear here too, how about that? Something I just discovered :) Makes sense I guess, I'm a pretty.. well, the polite term is 'coarse' I think in the big old 'real world', so why not here too? So, apologies in advance for that too, because I think it might  happen quite a lot.

Actually, no, I'm not actually that sorry. My current situation is at the very least *extremely* frustrating, and if swearing gets my point across more succinctly, then so be it! But I get that some might be a little sensitive to that, so I'll err.. endeavour to keep it at a minimum. There you go, compromise.  After a fashion.

Anyway, so, yep. My main aims behind this blog were to try and find some way and some place to record, report and look into things that I'm potentially going to find useful, that other people may also find useful too. Sounds easy, right? Hmm.. we shall see!

This blog's main aim is to focus on the things that make life that little bit more like well, LIFE for those registered as disabled in the UK (and beyond in some instances), and a little less like EXISTING. Which is a place that personally I have found myself in all too often, annoyingly and frustratingly. Sometimes it's the little things that make all the difference, right? And access to the right information is a vital part of that. To which end, I'm imagining links galore happening here, so please, again, in comments, feel free to post any links you've personally found useful, or if you're the shy, retiring type, my e-mail is always open at adapt_ability@yahoo.co.uk

For now, this blog is likely to have quite a personal flavour, as I'll be mostly writing from what I personally have experienced so far. however, I'd like it to grow and expand and become interactive, so we'll see how it goes, hmm?

Areas I'm likely to cover here include:
Co-morbid/ co-existing medical conditions/disorders and specific issues that arise in getting medical professionals to deal with that correctly
The challenges involved in being a parent who is registered disabled
The medication merry go round
Useful adaptions/aids that make life that bit easier and/or fun
Useful links and other sites

So, there we go.. my brain's crapping out a bit now, and I need to go take my meds, so this'll just have to do as far as introductions go, so TTFN!

Disclaimer:
I am not a medical professional. Of any stripe. Anything I post here is based on MY personal experience only, and/or that of any posters in my comments. Before undertaking any medication/ major lifestyle changes check with your own medical team, and research to heck and back to make sure it's suitable for your own situation. Thank you!